We have been running for over ten years and exist to support research involving people with type 1 diabetes who want to take part, from the moment they are diagnosed
The After Diabetes Diagnosis REsearch Support System first started in pilot form in 2008, and evolved into the ADDRESS-2 Cohort in 2011. The project has had support and funding from several organisations: the National Institute for Health Research’s Clinical Research Network (NIHR CRN), Breakthrough-T1D UK (formally known as JDRF UK) and Diabetes UK. The project is sponsored by Imperial College London
The projects 5 main objectives are:
•Maximize the opportunities for people newly diagnosed with type 1 diabetes to enter into early intervention trials by making them aware of these trials
•Provide opportunities to take part in observational studies soon after a diagnosis of type 1 diabetes, particularly for anyone who doesn’t wish to take part in an intervention trial.
•Share opportunities and signpost to studies recruiting people with type 1 diabetes for anyone who doesn’t feel able to take part in research at the time of diagnosis, but may want to after adapting to living with the condition.
•Facilitate people who may have a high risk of developing type 1 diabetes joining new prevention trials before the condition develops, particularly through siblings of ADDRESS-2 participants.
•ADDRESS-2 is a long-standing database of information about people who have a recent diagnosis of type 1 diabetes and a considerable resource for research. We want to make sure this can be used by researchers to answer questions and also anonymously link this to other information sources, such as genetic and other follow-up data, to make it even more valuable.