If you're a patient, family member or carer and are interested in getting involved in PPI, would like to find out more about being a public contributor, or would like to be added to the distribution list for upcoming PPI opportunities, please get in touch.
This group is run by the Southampton Clinical Trials Unit, the CRUK Southampton Senior Research Nurse and the Experimental Cancer Medicine Centre (ECMC). It brings together members of the public who have personal experiences of cancer, either as a patient or a family member/carer. The group is attended by researchers, trial teams and clinicians who are looking for early input into a clinical trial or require feedback from public contributors on trial materials and processes.
Public contributors are reimbursed for their time and out-of-pocket expenses, in line with the NIHR guidelines. Find out more in out PPI payment policy.
Certain groups and communities are underrepresented in clinical research. In the design and conduct of our trials, we need to ensure PPI reflects the whole population, to encourage more people from diverse backgrounds to take part in research.
Our widening participation projects aimed to understand and help begin to overcome the barriers that prevent or discourage people from underrepresented groups from taking part in PPI. We used community engagement workshops to facilitate discussions around trust in medical research and the barriers to participation. Together with community members, we co-produced resources to help researchers work better with underrepresented communities and help widen participation in their PPI work.
